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Table 7b: MBC Patient Support Provided by MBC Alliance Members
Patient Support
Organization Teleconference Support Groups Radio/ Podcasts Tv/ youTube Message Boards Social Media App Financial Assistance Conference / Networking
Print Chat Facebook Twitter Blog Helpline
AdvancedBC.org ✓
Breastcancer.org ✓ ✓ ✓ ✓ ✓
Cancer Support Community ✓ ✓ ✓ ✓ ✓ ✓ ✓
CancerCare ✓ ✓ ✓ ✓ ✓ ✓
Dr. Susan Love Research Foundation ✓ ✓ ✓ ✓ ✓
FORCE ✓ ✓ ✓
Living Beyond Breast Cancer ✓ ✓ ✓ ✓ ✓ ✓ ✓
Metastatic Breast Cancer Network ✓ ✓ ✓ ✓ ✓ ✓ ✓
Nueva Vida ✓ ✓ ✓
Patient Advocate Foundation ✓
SHARE ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓
Sharsheret ✓ ✓ ✓ ✓ ✓ ✓
Susan G. Komen ✓ ✓ ✓ ✓
Triple Negative Breast Cancer
Research Foundation ✓ ✓
Triple Step Towards the Cure ✓
Young Survival Coalition ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓ ✓
Definitions
Patient Advocacy - Use of health plans/mediation/arbitration; supporting patients to become advocates
Research - supporting MBC research; surveys; convened round tables
Policy - providing MBC policy forums
Patient Education - information to patients and their caregivers that will alter their health behaviours or improve their health status
Awareness - about MBC for the wider community; for families
Clinical Trials/Registries - providing information about clinical trials; maintaining registries
Scientific Contribution - MBC funded research
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*current as of June, 2014