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Notable MBC
publications:
Guide for the
Newly Diagnosed – Print Materials
Metastatic Breast As with web content, there is a scarcity of MBC information across print materials of individual
Cancer, LBBC & MBCN, Alliance members. The print materials tend to be of high quality, but few focus exclusively on
2014 the needs of people living with MBC (see Figure 13). Specific information provided by Alliance
Frankly Speaking members in print and online tends to be complex, requiring a tenth-grade reading level for a
About Cancer:
Metastatic basic understanding. Information about drug therapy is even more difficult to understand. This
Breast Cancer Series, is a concern because of estimates that 1 in 5 patients have poor literacy and 89% of patients
Cancer Support prefer visual materials to nonvisual material; wordy educational materials may not be read.
Community, 2013
Metastatic Navigator, Figure 13: Print Publications of Alliance Members Specific to MBC
YSC, 2010
Managing Practical
Concerns Raised by
MBC,
CancerCare, 2013

Notable MBC Specific
Conferences and
networking events:
• LBBC - Annual
• MBCN – Annual
• SHARE - Regular
networking events on
MBC topics

Notable support
groups:
MBC Retreats: A
Journey of Courage
and Hope for
Couples by Johns
Hopkins Hospital is
supported through
Avon Foundation for
Women
Conferences, Webinars, Support Groups, and Telephone Resources
Metastatic Breast
Cancer Network In-person support is vital for some MBC patients to help reduce feelings of isolation and
provides a list of allow for identification with others. Conferences, retreats, in-person support groups and
known in person other networking opportunities specifically for MBC patients help participants feel part of
groups at http://mbcn. a community. Many breast cancer conferences do include MBC programs, but they could
org/support#in- have more content. Conferences tend to be located in large cities, and some MBC patients
person-groups-for- find it hard to travel during treatment periods. Living Beyond Breast Cancer and Metastatic
mbc Breast Cancer Network have annual conferences specifically for MBC patients and caregivers.
Information about in-person support groups is hard to find.

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