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Some members work for particular target populations, such as patients with hereditary risk
(FORCE[Facing Our Risk of Cancer Empowered]), black patients (Sisters Network Inc.), Latina/o
patients (Nueva Vida), Jewish patients (Sharsheret), and young patients (Young Survival
Coalition).
Some members have an online presence only; others have a more extensive reach. Susan
G. Komen, for example, works at both the national and local levels through its headquarters
and national network of more than 100 local affiliates. (Note that, for the most part, Komen
reported MBC-related information and activities of its headquarters rather than the local
affiliates, for which the data are not complete.) Other participating Alliance members were
Avon Foundation for Women and Breast Cancer Research Foundation; these 2, in addition to
Komen, are among the largest private funders of breast cancer research in the US. In contrast,
many Alliance members have relatively limited resources; those with the most revenue
typically have the broadest focus on breast cancer. The 2 organizations focused solely on MBC
are the least resourced.
There is considerable variability among members as to where they direct their resources. As
noted, some nonprofits are active on a number of fronts, including research, patient support
and education and policy advocacy, whereas others are more focused in the scope of their
activities. Each member organization offers various educational and/or patient support
services, with almost all including information and support services for MBC patients and their
families. Of the advocate organizations providing information and support services to people
living with MBC, education is the largest area of investment.
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