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Unbranded disease
based websites:
The 5 unbranded disease-based websites of our industry members are primarily designed as
advancedbreast “sharing platforms” for patients, supporting social elements such as viewable comments and
cancercommunity.org chat rooms. Those that do provide information, such as www.advancedbreastcancercommunity.
org, tend to focus on diagnosis, current treatment options, and communication. Most sites
facesofMBC.org provide links to patient MBC advocacy organizations and funder sites. In general, the websites
lack overall cohesion, MBC content, and a well-organized links section. There appears to be no
pledgetofightforward.org commitment to consistently update the sites. These issues leave the user wondering “Why am I
here?” The breadth and depth of MBC information is shown in Figure 11b.
imaginis.com
myMBCstory.com
Figure 11b: Breadth and Depth of MBC Information in Industry Member Unbranded
Disease-Based Websites
The past 2 decades
have seen major
improvements in
supportive care,
but many MBC
patients fail to
receive adequate
palliation for their
symptoms that latest research/new treatments
could improve their current treatment options symptoms/side effects complementary medicine hospice/end of life care
quality of life. monitoring treatment pain management communication psycho/social support parenting issues advance directives
diagnosis clinical trials
advancedbreastcancercommunity.org
facesofmbc.org
pledgetofightforward.com
imaginis.com
magnoliamealsathome.com
mymbcstory.com
complete more less
A more complete source of MBC information and support for patients is housed in the disease-
state websites (branded by drug name) of each pharmaceutical company. Here, content
includes MBC disease information, treatment information specific to the marketed drug,
support tools for patients such as treatment planners, questions for HCPs, links to community
groups and discussion boards, as well as financial support for treatment.
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