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level, the websites offered information in 13 areas: diagnosis, current treatment options, latest
research and new treatments, symptoms and side effects, monitoring treatment, clinical
trials, complementary medicine, pain management, communication, psychological and
social support, parenting issues, hospice and end of life care, and advance directives. Print
materials (excluding those from pharmaceutical members) were appraised for the extent and
quality of MBC content. Videos and webinars were not assessed. Thirteen organizations were
sent an online survey to capture information about helpline/hotline services; 8 organizations
completed the survey. The survey participants are provided in Appendix 7.

A top-line review of 10 publicly available surveys and 4 proprietary reports provided by Alliance
members was undertaken to identify continuing themes, recent trends, and new gaps in
information.

Preliminary findings were discussed with Alliance members in a meeting in New York City on
March 3-4, 2014.

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