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1 Mayer, M., Grober, S.E., Caplan, E. Silent Voices: Women with advanced (metastatic) breast cancer share their needs and preferences for
information, support and practical resources. 2006: Living Beyond Breast Cancer website.
2 Mayer M., Lessons learned from the metastatic breast cancer community. Semin Oncol Nurs, 2010. Aug26(3):pp.195-202.

3 Mayer, M., Huñis A., Oratz, R., Glennon, C., Spicer, P., Caplan, E., Fallowfield, L., Living with metastatic breast cancer: A global patient survey.
Community Oncology, 2010. 7(9).

4 Ibid., Seminal Oncol Nurs, 2010.
5 Harding, V., Afshar, M., Krell, J., Ramaswami, R., Twelves, C.J., Stebbing, J. ‘Being there’ for women with metastatic breast cancer: a pan
European patient survey. British Journal of Cancer, 2013. 109(6).
6 Corneliussen-James, D. International survey identifies key support and lifestyle needs of metastatic breast cancer (MBC) patients in ABC1:
Advanced Breast Cancer First International Consensus Conference. 2011: Lisbon, Portugal.
7 Smith, M.L., White, C.B., Railey, E., Storniolo, A.M., Sledge, G.W., Metastatic Breast Cancer Drugs: Using Conjoint Analysis to Examine
Attributes of Paclitaxel and Capecitabine in 2012 ASCO Annual Meeting. 2012, Journal of Clinical Oncology: Chicago, IL.
8 Smith, M.L., White, C.B., Railey, E., Storniolo, A.M., Sledge, G.W., Preferences of Patients with Metastatic Breast Cancer: A Market Research
Initiative To Understand the Patient Perspective on the Risk-Benefit Tradeoff in the Treatment Decision in 2011 ASCO Annual Meeting.2011,
Journal of Clinical Oncology: Chicago, IL.
9 Mayer, M., Doan, J.F., Lang, K., Hurvitz, S.A., Lalla, D., Woodward, R.M., Brammer. M., Menzin, J., Tripathy, D., Assessment of burden of illness
in women with HER2+ metastatic breast cancer: The results of a community-based survey in 2011 ASCO Annual Meeting. 2011, Journal of
Clinical Oncology: Chicago, IL.

10 Canadian Breast Cancer Network (CBCN), Rethink Breast Cancer. Metastatic breast cancer in Canada: The lived experience of patients
and caregivers. Rethink Breast Cancer website.

11 Seah, D., Lin, N., Curley, C., Winer, E.P., Partridge, A., Informational needs and the quality of life of patients in their first year after metastatic
breast cancer diagnosis in San Antonio Breast Cancer Symposium. 2012, Cancer Research: San Antonio, TX.

12 White C.B., Smith, M.L., Abidoye, D., Lalla, D., Impact of toxicity on patient treatment choices for metastatic breast cancer in 2012 ASCO
Annual Meeting. 2012, Journal of Clinical Oncology: Chicago, IL.
13 Harris Interactive, Novartis Oncology. Count Us, Know Us, Join Us Advanced Breast Cancer Survey in ABC2: Advanced Breast Cancer
Second Consensus Conference. 2013: Lisbon, Portugal.
14 Mayer M, Grober S.E., Patient Perspectives on Control of Symptoms and Side Effects of Metastatic Breast Cancer in ABC2: Advanced
Breast Cancer Second Consensus Conference. 2013: Lisbon, Portugal.
15 Rowe, J., Surveying Young Women with Metastatic Breast Cancer to Create Interventions with Impact in ABC2: Advanced Breast Cancer
Second Consensus Conference. 2013: Lisbon, Portugal.

16 Buzaglo, J., Cancer Experience Registry: Metastatic Breast Cancer, Update to the National Advisory Council, in Cancer Support
Community. 2014: Washington D.C.

17 Buzaglo, J., Morris, A., Gayer, C., Miller. M., Work-related impact of metastatic breast cancer: Results from the Cancer Experience Registry
in 7th Biennial Cancer Survivorship Research Conference. 2014: Atlanta, GA.