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Acknowledgments

The MBC Alliance is grateful to the many organizations and individuals who volunteered their time,
particularly the women and men living with MBC who shared their personal experiences and advice.

The landscape analysis in Chapter 2 reflects the contributions of key opinion leaders including scientists,
medical teams, advocates, journalists, policy makers, other stakeholders, and various consultants.

Special thanks to Elly Cohen and Susan Colen for analyzing currently active MBC clinical trials and to
Lynne Davies and the International Cancer Research Partnership (ICRP) for helping with the funded grants
analysis.
Special thanks also to Musa Mayer for her work in researching quality of life and epidemiology.
Sincere thanks to Celgene Corporation, Genentech, Eisai, Eli Lilly, Novartis Oncology, and Pfizer for
providing financial support for the Alliance in 2013 and 2014. Also, thank you to the Avon Foundation for
Women—the administrative home for the Alliance.

The landscape analysis was overseen by a steering committee and working group structure comprised of
representatives of member organizations.

Steering Committee

Musa Mayer, AdvancedBC.org; Marc Hurlbert, Avon Foundation for Women; Cara Thompson, Celgene
Corporation; Virginia (Ginny) Knackmuhs, Shirley Mertz, Metastatic Breast Cancer Network; Kelly P.
Hodges, Sisters Network Inc.; Kimberly Sabelko (replacing Stephanie Reffey), Susan G. Komen

Working Groups

Information and Services Membership
Jane Levy, CancerCare; Allison Harvey, Cancer Diane Rose, FORCE; Ginny Knackmuhs,
Support Community; Jo Dulay, Genentech; Janine Metastatic Breast Cancer Network;
Guglielmino, Catherine Ormerod, Living Beyond Jacqueline McKnight, Kimberly Sabelko,
Breast Cancer; Ginny Knackmuhs, Shirley Mertz, Susan G. Komen
Metastatic Breast Cancer Network; Christine
Benjamin, SHARE; Kelly P. Hodges, Sisters Network® Consultants
Inc.; Susan Brown, Jeremy Patch, Susan G. Komen; Lynne Davies and the International Cancer
Jean Rowe, Young Survival Coalition Research Partnership; Kristine De La
Torre; Jon Fulton; Pamela Miller; Cynthia
Research Geoghegan, Jane Perlmutter, Patients and
Musa Mayer, AdvancedBC.org; Marc Hurlbert, Partners, LLC
Avon Foundation for Women; Elly Cohen,
BreastCancerTrials.org; Lisa Schlager, FORCE; Project Director
Ginny Mason, Inflammatory Breast Cancer Katherine Crawford-Gray, MSC, MBA
Research Foundation; Mary Lou Smith, Elda Railey,
Research Advocacy Network; Stephanie Reffey, Kari Editor
Wojtanik, Susan G. Komen; Michelle Esser, Young
Survival Coalition Jenny Lamont, MS, ELS

Governance Graphic Design 21
Julissa Viana, Celgene Corporation; Amy Bonoff, Corrine Ellsworth Beaumont, PhD
Heather Ortner, Dr. Susan Love Research (http://corrinebeaumont.com)
Foundation; Jean Sachs, Living Beyond Breast
Cancer; Rochelle Shoretz, Sharsheret